Welcome to Our Story

Welcome to our family’s website, where we share the story of our daughter, Grace Davenport, and our experiences with Ogden’s syndrome. Through these pages and our blog, we aim to provide insights into the challenges and realities we face as we navigate life with this rare condition.

Through our page and blog, our goal is to offer information, support, and a sense of community to others who may be on a similar journey. Thank you for joining us as we share our story.