Grace has an amazing Heart specialist,
we went to see Dr Sophia Khan. She truly is a caring lady, we are so blessed to have Sophia looking after Graces Heart 
yesterday we had good news, Graces hole in her heart has slightly closed a little more,
Grace still has a thickened heart wall but it hasn’t got any thicker so yes it’s still there but it’s not got thicker !! Xxx
Sophia is pleased with Graces progress, she has said we just need to keep Grace as well as we can, get her peg in situ, sort suction machine, get her teeth removed, etc etc etc
Dr Sophia Will be doing a case study on Grace, because the syndrome is so rare, complex and how it effects Grace, her whole body including her brain is effected by NAA10 Ogden syndrome, she wants to inform other Doctors, consultants etc because it is so unknown xxx
